Kidney Thinking. The blog from Think Kidneys

By Dave McHattie, Co-Chair of the Think Kidneys Intervention Workstream Transforming Participation in Chronic Kidney Disease and Renal Patient In 2015 the UK Renal Registry put together a group of 14 patient and health professional volunteers to work as a team to develop a package of interventions which would help patients become more active in their health care and change the way clinicians interact and support them. Our…

By Sarah Evans, Programme Support Officer at the UK Renal Registry Working on the TP-CKD project for the last year I have seen the hard work and excitement created by what the programme’s delivering for renal units in Cohort 1. However when the Renal Unit Clinical Directors across England were approached about making the PREM (Patient Reported Experience Measures) a national survey – rather than limiting…

By Bill Dickson, Kidney Patient and member of the Nottingham Team for Transforming Participation in Chronic Kidney Disease The English language is possibly the most effective para-medical tool we have. Used correctly it can calm a stressful situation, both for patients and their families. It can effectively give a positive path when looking to the future. Language thus used in both forms – verbal and written….

Having agreed to take on the role of Patient Co-Chair for the TP-CKD Measurement Workstream I needed to know what I had let myself in for. Having been a renal patient since childhood, I felt I was well equipped to deal with the “patient” part of the role, and being a Research Scientist, often using PROMs and PREMs, I had that part covered as well! Great,…

Working on the TP-CKD project I have been struck by how exciting the vision of the programme is. The underlying message that imbues the whole programme is that patients have skills and knowledge that are an asset which is currently going to waste, and by working closely with them a service can be delivered that both professionals and patients benefit from. The NHS has come a…