The annual, national kidney Patient Reported Experience Measure (Kidney PREM) is open to NHS kidney patients in the United Kingdom from 1st June to 30th June 2019. Designed by patients and professionals working together to find out how kidney patients feel about the services their kidney unit provides, the Kidney PREM helps renal units to understand what they are doing well and where they can do better. Read the 2018 Kidney…
Read MoreLatest news
Here is a round-up of the latest news from the Transforming Participation in Chronic Kidney Disease programme, our partners we are working with and others interested in the progress of the programme.
If you have a news story relating to Transforming Participation in Chronic Kidney Disease you would like to share please get in touch.
Comprehensive kidney patient transport guidance launched
Vital guidance has been launched today in a new report ‘Dialysis Transport – finding a way together’. The report is the work of the Dialysis Transport Working Group, a coalition of patient organisations; Kidney Care UK, the Renal Association, the British Renal Society and the National Kidney Federation. Guidance is needed because 50% of all non-emergency patient transport paid for by the NHS is for dialysis patients,…
Read MoreTP-CKD Programme: Quality improvement work highlighted in the British Journal of Renal Medicine
An article highlighting the work of the TP-CKD quality improvement programme was published in the British Journal of Renal Medicine last month. The article, entitled “Is it possible to embed patient reported outcome measures to make a difference to care and the perception of care?” focussed on the TP-CKD programme that ran between 2015 and 2017, and worked in partnership with 14 renal units across England…
Read MoreValuing Individuals – Transforming Participation in Chronic Kidney Disease (TP-CKD)
The TP-CKD programme was underpinned by the values of co-production, from the programme board level right through to renal unit level and the partnership between patients and their healthcare professionals. This way of working brings a wealth of knowledge and information, however it is also a new concept that for many can pose challenges along the way on many different levels. This article describes how the…
Read MoreSpring newsletter – available now
Today is World Kidney Day! We thought this was a good time to release the Spring edition of the newsletter from the Renal Association’s quality improvement team and remind everyone, everywhere to Think Kidneys. Included in this issue – more information about World Kidney Day, a new strategic direction from the Renal Association’s President, Graham Lipkin, growing leadership skills across the multi-professional workforce with KQuIP, and work…
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