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Following the national meeting in November 2018, over 60 members of the multi-professional teams, patients and families came together on Friday 28th June in Birmingham to launch the Paediatric Kidney Quality Improvement Partnership (KQuIP). The day was co-chaired by Daljit Hothi, consultant nephrologist from GOSH, and Kamal Dhesi, patient advocate and carer. 13 renal units from across the UK were represented and received a whistle-stop tour…
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The annual, national kidney Patient Reported Experience Measure (Kidney PREM) is open to NHS kidney patients in the United Kingdom from 1st June to 30th June 2019. Designed by patients and professionals working together to find out how kidney patients feel about the services their kidney unit provides, the Kidney PREM helps renal units to understand what they are doing well and where they can do…
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My name is Nick Palmer, I am Head of Patient Support and Advocacy for Kidney Care UK. Importantly I am a kidney patient and bring my unique insight to add to the collage that already exists. Living with kidney disease, its symptoms and side effects of treatment, is comparable to any other devastating disease, such as Cancer. At times it can be emotionally as well as…
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Vital guidance has been launched today in a new report ‘Dialysis Transport – finding a way together’. The report is the work of the Dialysis Transport Working Group, a coalition of patient organisations; Kidney Care UK, the Renal Association, the British Renal Society and the National Kidney Federation. Guidance is needed because 50% of all non-emergency patient transport paid for by the NHS is for dialysis patients,…
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The team had a busy and energising three days in Brighton for UK Kidney Week this year, with the programme committee putting Quality Improvement in kidney care high on the agenda. There were countless sessions and work-shops (so many it felt like we were at Glastonbury!) exploring the latest tools available, highlighting QI projects being implemented, and discussing how the whole community of stakeholders – patients,…
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