Data and Measures is essential to the success of any quality improvement project and has been vital in the success of Transplant First and measuring improvement in access to kidney transplantation.
The first round of data collection was undertaken in February 2016 as an enhancement to the renal dashboard data already collected by the UK Renal Registry for NHS England. Feedback from this activity was used to revise the dashboard for the second quarter.
The second round of data collection took place in May 2016 and has been reviewed and feedback has been provided to units regarding their submissions. Further changes will also be made to the dashboard as progress is made.
The following measures have been used by the West Midlands:
- Annual kidney transplant waiting list registration rates expressed as a percentage of total dialysis population (under 70y) and annual take-on to dialysis at each West Midlands Renal Unit (UKRR and NHSBT).
- Total, Live Donor and Deceased Donor kidney transplant rates for each Renal Unit in the West Midlands (NHSBT) expressed as a proportion of each Renal Unit’s total kidney transplants performed/annum and as a proportion of each Unit’s total dialysis population (under 70y).
- Unit-specific pre-dialysis (pre-emptive) renal transplant-listing registration rates as percentage of all kidney transplant-list registrations for each Unit (NHSBT).
- Waiting time to renal transplantation for each Unit and for West Midlands (longer term measure-NHSBT)
- NHSBT deceased donor Kidney transplant -offer decline rates (NHSBT) in comparison with rates across the UK (6 monthly feedback of rates of deceased donor kidney graft decline rates).
- Proportion of total number of patients on the renal transplant waiting list who are suspended (NHSBT).
- 1, 5 and 10 year kidney graft and patient survival rates (NHSBT) for each Unit (NHSBT)-total, live donor and deceased donor